Meet Carter and Charlotte.

We learned that Carter had PKU four days after he was born through his newborn screening. It was overwhelming at first - after going through pregnancy without knowing, we suddenly found ourselves facing something we knew nothing about. We didn’t know what the future would hold or what life would look like, but over time we’ve found incredible support and resources to help guide us, including the National PKU Alliance (NPKUA).

Our daughter Charlotte, born December 17, 2025, was also diagnosed with PKU, making this journey even more personal for our family. While this wasn’t the news any parent hopes for, we feel grateful that they will have each other and that we now have the knowledge and support to help guide her from the very beginning.

We are still learning every day, but their smiles and cheerful personalities continue to reassure us that they are going to be just fine.

When Carter was born in July of 2022, there were around 35 people in Alaska living with PKU. We’ve spoken with many people about PKU, and it’s rare that anyone is familiar with it. That lack of awareness is what encouraged us to create PKU Alaska.

Our mission is to raise awareness about PKU and support funding for medical research and resources. We are so grateful for the support we’ve received and look forward to all that is to come.